*** NEWSFLASH!!! *** On TV3′s Campbell Live Wednesday night!

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On TV3’s Cambell Live, Wednesday night;

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Acknowledgment: Dominion Post – Mum not prepared to wait and die

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TDB Recommends NewzEngine.com

Allyson Lock, and six other New Zealanders are suffering from a rare condition called Pompe Disease. It is a condition that is treatable – but which PHARMAC refuses point blank to fund because of “price”.

Allyson is “lucky”. She is receiving treatment from a pharmaceutical company as part of a trial. For this, she has to travel to Australia every two weeks. As I wrote in a previous blogpost,

The travel involved leaving on Wednesday by driving from Masterton to Palmerston North; flying from Palmerston North to Auckland; flying from Auckland to Brisbane; driving next day to a hospital; having treatment; next day flying from Brisbane to Auckland; staying in Auckland overnight; then flying from Auckland to Palmerston North, and then driving from Palmerston North, home to Masterton. In the meantime her husband took time off work to care for their children. (Travel, food, and accomodation costs are met by the drug company.)

This routine takes place every two weeks.

Source: “One should judge a society by how it looks after the sick and vulnerable” – part tahi

There are others with Pompe Disease not so “fortunate”, and PHARMAC’s decision is efftively a death sentence.

This blogger has supported Allyson and her fellow sufferers ( aas well as others with rare diseases). Correspondence with Health Minister, Tony Ryall, yielded this deeply callous response,

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Not enough money to fund treatment for ill New Zealanders – but plenty to throw at new BMWs?  Rugby World Cup tournaments?  Or subsidise movies? Or other corporate welfare? Or bail-outs for finance companies? Or pay rises for MPs?

Campbell Live has taken an interest in Allyson, and will be featuring a story on her tomorrow night(Wednesday 15 May).

This blogger encourages the reader to tune in to Campbell (tv3, at 7pm, ot TV3-Plus, at 8pm) and share in Allyson’s story.

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Previous related blogposts

Terminal disease sufferer appeals to John Key – Update & more questions

Terminal disease sufferer appeals to John Key

National Party Supporters and their ‘Empathy’ for a woman with a terminal disease

“One should judge a society by how it looks after the sick and vulnerable”

“There’s always an issue of money but we can find money for the right projects” – John Key

Health Minister circumvents law to fulfill 2008 election bribe?

Priorities?

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= fs =

4 COMMENTS

  1. Dear Tony Ryall
    Minister of Manslaughter . We can’t wait to bump into you in the street .

Comments are closed.